I had to go back and read my last posting to see where I left off. Time passes so much faster being home .... even if my only "event" during the day is a walk.
But, that's also about where my energy level and ability to focus has been. Last week was a bit of a rough one. Fatigue kicked in Mon./Tues. to a level I'd never experienced! I mean, I was prepped for being tired, but .... getting out of bed at 9:00, taking an hour nap by 10:30, forcing myself to shower and eat lunch, then laying down again for another 45 min., going for a 30 min. walk (feels great!), then crash ..... counting the minutes till bedtime, being in bed by 7:00. I didn't expect that much. Thursday's check up was another good one (napping the car ride down and back). Counts are good, everything on track for where it should be. Just as I thought I was getting to only "tired" stage Friday, I got hit hard with the head cold Griffin was getting over. And because of all the meds I'm on and carefulness of masking anything greater, my box of kleenex was my only defense. No tylenol, no cold medicines. Finally started turning the corner yesterday, physically and mentally.
I was able to cover myself up with my heavy duty, build for crowds mask, and attend Sam's winter concert last night, and will go to Tucker's tonight. The beauty of living so close to the school - slip in, slip out .... but able to see them.
This Thursday's visit at DHMH is a full boat. A couple of monthly/bi-monthly meds, check up with docs, and our first bone marrow biopsy. It will take about 7-10days to get the results, but it will show the % of engraftment from Doug's cells to mine. It's quite amazing!
As always ..... you all uplift me with your emails, blog responses, waves and hellos ..... out walking on Sunday and saying hellos to a few familiar faces along the way was the best pick me up to my otherwise feeling losy that day. I appreciate all the support more than you know!
lots of love - Pam