DHMC again

So we got back home Thursday night about 6:00, still with fever at 100.4, but all tests were clear. Might as well be at home, but if it went to 101 .... back in.
Friday - slept ALL morning and didn't even get out of bed till 2:00 but temp was in the 99s, by 3:00 low fever again, by 5:00 spiked at 102. Call down .... come check in. By the time we got everything lined up and covered, we left by 7:15 and got here at 9:00. Again, all blood work, cultures, xrays and CT scan on lungs ... everything still clear and negative .... but, my counts had dropped significantly, all of them. With an infection or virus, it would be normal for white cells to drop, but shouldn't necessarily effect platelets and red cells, and these dropped too, especially platelets .... alot. This has brought concern to the drs. as to what is going on with my bone marrow and possibly the engraftment. Saturday I had a bone marrow biopsy (which was
scheduled for Wed. anyways). By today we'll get some info from it from the pathologist. This morning they did think it looked good and that this could all be a virus. Hopefully that means I head home this afternoon. On Wed. when we meet with Dr. Meehan, he'll have more info/plan/adjustments/whatever to share with us.

This is all very unnerving and scary. And I have to remind myself it's not black and white, "works or doesn't work" ..... it's all gray really. All symptoms I have, could be a number of different things at any time. There are so many factors and there lots of bumps and hurdles. Since everything went so text book last time, this has been very hard mentally since I left the hospital the first time (see what I mean twhen I kept saying that was the easy stuff ... they real work begins when you leave).

We'll update again at the end of the week.

Love - Pam